October is Dysautonomia Awareness Month!
October is also Dysautonomia awareness month! Dysautonomia usually goes hand in hand with LEMS! I know many of us have already been diagnosed with POTS (Postural Orthostatic Tachycardia Syndrome).
My dysautonomia symptoms were the start of my LEMS story
Dysautonomia is an “umbrella” term that covers several neurological conditions!
If you’re not familiar with the term “Dysautonomia,” here is a pretty informative video about it!
<iframe src=”https://player.vimeo.com/video/187404694?portrait=0″ width=”640″ height=”360″ frameborder=”0″ allow=”autoplay; fullscreen” allowfullscreen></iframe>
<p><a href=”https://vimeo.com/187404694″>What is POTS?</a> from <a href=”https://vimeo.com/dysautonomia”>Dysautonomia International</a> on <a href=”https://vimeo.com”>Vimeo</a>.</p>
POTS is caused by a dysfunction of the autonomic nervous system (ANS), which controls almost every system in the body. Symptoms and severity can vary depending on the severity of damage to you ANS. I have moderate damage to my ANS which has caused issues with my cardiac conduction circuit, neuropathy of my small fiber nerves, and severe acid reflux.
How many of you are also “Potsies?”
Raising POTS Awareness
If your family is like ours, you are regularly visiting doctors, therapists, school nurses, and other health practitioners seeking answers. Why not print a couple of brochures to give a pediatrician or family practice doctor while you are there? If your doctor is well versed, hand them to family or friends who work in the healthcare system. People that you know are more likely to read the materials. Hopefully this can start a conversation about POTS. We can make a difference if we just stand up! Here are some flyers that you can print at home and to increase awareness in the medical community.
Qualities of the Best Doctors
What Every Doctor Should Know about POTS
Scientific Understanding of POTS
There are many healthcare practitioners who see people with chronic illness. If you have a school-age child, please consider printing this document and delivering it to the school nurses in your district. You could send it in with the medical form that you complete each fall, or drop it off one day when you are in the office. These nurses are on the front lines for our teens who develop POTS!
Letter to School Nurses about POTS
Chronic illness creates issues for people that many don't understand, including the desire to stop living in pain and suffering. Help us to educate our communities by printing and delivering this information to mental health and other practitioners in your community. A few minutes of your time could save a life.
Understanding Chronic Illness in Suicide Prevention
The Tangible Effects of Invisible Illness
This year marks our 10th Annual Dysautonomia Awareness Month! Since Dysautonomia International launched the first Dysautonomia Awareness Month campaign in October 2012, our amazing volunteers have organized thousands of awareness activities around the world, helping us reduce diagnostic delays, improve resources, and compassion for patients in their communities, and increase support for research funding. This year we are not organizing in-person events due to COVID-19, but we encourage everyone to get involved by raising awareness in other creative ways. Here are the best ways to get involved.
31 DAYS OF DYSAUTONOMIA AWARENESS SOCIAL MEDIA CAMPAIGN
Participate in the Dysautonomia International 31 Days of Awareness social media campaign (#31DaysofDys) and invite your friends and family to join you! Follow us on Facebook, Instagram and Twitter to find educational infographics you can share each day, and check out the #31DaysofDys actions you can take from home to raise awareness and advocate for our community!
LIGHT IT UP TURQUOISE
Want to be part of a unique awareness event? We invite Dysautonomia International volunteers to light up a building or monument turquoise for dysautonomia awarenesss in your community! Here's a lighting request letter you can use.
#31DaysofDys PHOTO CONTEST
We'd love to see photos of any buildings, monuments or billboards lit up turquoise for Dysautonomia Awareness Month in your community! We'll share some of the best photos on our social media channels this October. The top three photos submitted by October 31, 2021 win a gift basket with dysautonomia awareness swag, a Dysautonomia International insulated tumbler, Liquid IV and SaltStick samples. Email your photos to [email protected] Be sure to include your full name and mailing address in the email.
GET GOVERNMENT RECOGNITION
Ask your local or regional government to issue a proclamation recognizing the month of October as Dysautonomia Awareness Month on behalf of Dysautonomia International. Here's a proclamation request letter you can use. Send us a photo of yourself or your family holding up the proclamation and we'll share some of the photos on our social media channels in October (email photos to [email protected]). Ask your elected officials to tweet about the proclamation too!
BILLBOARDS TO REACH YOUR COMMUNITY
Many billboard companies may be willing to donate unused electronic billboard space to Dysautonomia International during the month of October to help us raise awareness. We have several professionally designed billboard layouts available. Here's a letter you can send to billboard companies in your area to request electronic billboard space. Email a photo of the billboard to [email protected] and we'll share some of the photos on our social media channels in October.
PRESS COVERAGE TO REACH THE MASSES
Obtaining accurate press coverage is the most effective way to reach as many people as possible with our dysautonomia awareness message. Reach out to your local media outlets - television, print, radio and online - to see if they will interview you about living with dysautonomia, or let you write an article tailored to educate their audience. It is important that you are 100% medically accurate when dealing with the media. Please review our Dysautonomia International Media Guide for some tips on how to successfully obtain press coverage about dysautonomia, and reach out to us at [email protected] if you need any expert quotes or a sample press release.
HOST AN ONLINE FUNDRAISER
Creating an online fundraiser for Dysautonomia International is a great way to raise awareness in your community and raise funds for a cause that is important to you. There are two easy ways to host an online fundraiser:
1. create an easy to set up Facebook fundraiser, or
2. ask your friends and family to donate directly through the Dysautonomia International website at dysautonomiainternational.org/donate. They can list your name or the name of your fundraising project in the "in honor" field on the donation form, and we'll let you know how much was raised in your honor.
COVID-19 may keep us apart this year, but we're looking forward to another great Dysautonomia Awareness Month this October!
All directions. Should I wait for the parents of the bitten kid in the evening. Most likely, a hysterical mother will come running screaming - "Your son is dangerous for society!" It is necessary to find.
Day pots awareness
If they don't like something, they can beat me up. I held back the tears of impotence as best I could. At the end of the speech, they began to undress, the main one was the first to. Take off her jacket. She had wide This is a story that happened to the sisters.Living with POTS -- Dysautonomia Awareness Month
I love like a dog that I have trained. Strange relationship. Look at yours.
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Oh yes, Aunt Ira was 5 years younger. Every summer we spent at my grandmother's in the village, where all the relatives gathered. It was always cramped, but fun, for us, but adults sometimes had arguments and even quarrels over different everyday situations. As it happens in almost all large families: they made noise, argued and calmed down, but mom and aunt Ira were always.